Me and my Arthritis… 5 things I learned

28 Apr

I’ve mentioned in a past post (or two) about me being stuck in a rut or not being able to do certain things and have always hinted at explaining it at a later time. Well the time has come! 🙂

So a little over a year ago I was diagnosed with having a ‘condition’ called Seronegative Spondyloarthropathy. Don’t worry it’s nothing life threatening. What I came to find out is that it’s really a fancy way of saying I have a ‘joint disorder’. And to break it down some more it’s a form of Arthritis. However, for some reason in my case, I’m accompanied with muscles spasms as a bonus prize.

Anyway, It’s been an interesting journey and battle to say the least. But just like many random curve balls in life, I’ve learned a few things along the way.

1. Arthritis It hurts like a bitch. Yeah I know that should go without saying but I had to mention it AND put it on the top of my list. Seriously, the pain is something I’ve never experienced before (this is coming from someone whose been through surgeries and some other issues that we can discuss later) and wouldn’t wish it on my worse enemy. Ok maybe I would but I wouldn’t wish it on just anyone.

2. Everyone (if you can and have the means) should have some sort of healthcare insurance. Now this isn’t my backwards attempt to discus politics. (For those outside the US healthcare reform or ‘Obamacare’ is a big issue right now.) This is me telling you exactly how I feel; and this goes to my generation the most. The 20 something’s who think we’re invincible and would rather save that extra chunk they take from your check on payday. Trust me I was there. I was you.

I never liked going to the doctor unless it was time to check something womanly or unless I was on my death bed; but at the time I was living in the commonwealth of Massachusetts where we were actually required to get insurance. If that had not been the case, I wouldn’t have gotten it.

And thank God I did because when I got, (not sick, not hurt) but you know when all this went down, had I not had insurance, life would have been really hard for me. I stayed in the hospital more then once for weeks at a time and had to go back and forth to different docs before they could even figure out what the hell was wrong with me. I don’t know where I would be if I was getting those doc and hospital bills in the mail now. Which leads me to…

3. Doctors can be some really prideful idiots. I’m not bashing ALL doctors, hell I have doctors in my family. But some, especially the ones I first encountered were idiots and couldn’t figure out what was going on with me.

This would have been fine since they’re human and all, but instead of telling me “I don’t know what’s wrong with you and you should go see someone else” they thought it was a good idea to guess and therefore misdiagnosed me several times.

From ‘severely tearing’ many major muscles in my leg, which confused everyone seeing as how I had been sleeping when the excoriating pain hit me, to things that really have nothing to even do with thigh and hip pain, it was as if they were picking out of a hat.

Had they gotten it right before, and not the almost 6 months later when I finally found someone competent, things wouldn’t have been as bad as they got. Yeah get a second opening and sometimes third or fourth if need be.

After all you know what they call the guy who graduated at the BOTTOM of his med school class right? Yup- DOCTOR!

4. Friendships get tested. People you don’t expect to rise to the occasion do and others you think will be there flop on you. I don’t need to go into this one much. It’s pretty self explanatory. You never know whose going to step up and it always hurts when people you loved and thought loved you don’t think twice about turning their backs on you.

And most importantly-

5. You’re never too old to ask for help and cry for your mommy. Yeah this was the biggest thing for me. I’m stubborn; I know this and probably always have been. If I was starving it was hard to admit that it’s because I didn’t have money that week and if I’m hurt the last thing I want to do is cry like a baby in front of people.

Oh make no mistake, I have no problems crying if let’s say I’m sad  about something or even acting a little melodramatic about having a cold but if I’m in pain or If  something is really going on, I’m known to internalize it and take it on myself.

I think I knew the minute I was in the hospital, the first time, that everything had already changed. I think I knew BEFORE being admitted a second time and my wonderful mother flew up to help take care of me that I needed her. And I can admit, now, that when I was told I couldn’t go back to work I wasn’t surprised; but that stubbornness in me fought and the person I was fighting was really my damn self. I’m in a much better place internally and physically now that I accepted that help.

So yeah that’s that.

I’m actually doing much better now (in case your wondering, if not that’s ok to Lol.)

So now you know why I have a pretty cane that I adore (Thanks C)  or why I have a sexy pimp limp and use scooters when I go to certain stores.

cane

My pretty cane 🙂

But most importantly you’ve learned that Lolo can be deep when she wants to! Who knew? 😉

8 Responses to “Me and my Arthritis… 5 things I learned”

  1. CurtisTast April 8, 2017 at 6:20 AM #

    lmbgdjb

  2. Nicole May 5, 2012 at 11:05 AM #

    I agree with the points you listed above. I thankfully have made it this far without having any major health scares. However, I have relatives that have different health conditions…in fact I’ve been helping take care of my grandma since her health just started sliding since last summer (this is a big part of the reason there is a huge gap of posts on my blog from Aug 2011 until I started up again in March). I’ve made similar observations to what you posted above. Especially #4…not just friendships get tested, but relationship with family members. I won’t go into that here, but let’s just say…yeah I know exactly what that’s like to have people turn their back on you when you need support the most.

    Thanks for sharing your story. I’ve been going through a lot in regards to my grandma and trying to help make whatever time she has left as comfortable as possible for her but right now I’m not at the point where I can sit back and write about the experience in a public forum. It’s not easy to do – so again, I applaud your bravery.

  3. halfbakedlog April 28, 2012 at 9:32 PM #

    I love the martini glass jewelry on your blog site.

    I have never heard of your type of arthritis. I have touches of arthritis here and there. My knee has a touch of it and it can be tough walking down the stairs sometimes. Mitt may have done you well in Massachusetts?

    I too, for other reasons, have had issues with doctors. About 15 years ago, I also had excruciating pain in my legs upon waking in the middle of the night. It was a one time thing, lasting about 10 nights in a row, and never came back but it haunts me. No one could answer the why for this happening. It was the worst pain I ever had.

    If nothing else, may you scoot and limp through many more good years.

    • lolosofocused April 28, 2012 at 10:30 PM #

      Thanks! I barely even remember how I did the martini glasses and I’ve been afraid to try something else for fear of messing it up! Lol

      As for the arthritis, I never heard of this type before either. I seriously thought they were making it up at first, well that’s of course after I thought I was probably dying. I mean really Seronegative Spondyloarthropathy? I can’t even pronounce it, it sounds that serious! Lol

      Seriously, I feel you. My heart goes out to you to cause I KNOW that type of pain is excruciating and honestly hard to even explain. sigh! If that pain ever comes back, knock on wood that it doesn’t, but if it does they might have to drain fluid from your leg. Yes its as gross and painful as it sounds lol i had to go through it but it helped a little!

      Thanks for sharing with me! 🙂 I hope your knee doesn’t continue to give you troubles!

      • Anonymous May 4, 2012 at 8:17 PM #

        Wow Lo, you fell of the face of the earth and I never knew how bad it was. You are one of the strongest women I know, and I know you will get through it I wish you all the best and hope you have some time to reconnect. I love you and I’ll keep you in my prayers.

        Love,

        Mindy

Trackbacks/Pingbacks

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